我真的参与了克罗恩和美国的结肠炎基础(制造商)。他们每年都会举办一个名为“绿洲夏令营”的夏令营,我9岁的时候就开始参加夏令营了。起初,因为我小时候有过一些小插曲,我受到父母的庇护,离开家对我来说很不自然。在夏令营时,我第一次觉得得了克罗恩病没什么问题。实际上,我还和营地里的很多人保持着联系。
我总是喜欢时尚和装备在一起,但我的克罗恩非常严重,剩下的唯一选择要做手术,我必须得到一个造口袋。手术后,我不知道我是否可以穿那种时代的时尚像庄稼上衣,比基尼和我只是感到不安全的新事物。因为我的医生告诉我有机会让它离开,我的心脏就是这样。我确实带着我的行李,两年我没有包包,我的生活质量很可怕,我什么都没做。I couldn’t hang out with my friends, I was in my bedroom or at the hospital and I just realized that I was looking at all the negatives for a very long time and I didn’t really look at the positives of having an ostomy bag. I think it was really hard for me to come to terms with the fact that I was going to have to live with a bag for the rest of my life. Last September, I had my bag put back on. In the last few months, I’ve gotten to experience life and live as a teenager. I finally embraced having an ostomy bag and I started picking out outfits and made them work with the bag. Now I sit down at my mom’s old sewing machine and sew different shirts to make clothes with the bag, but I think it can go further than that to help other girls with disabilities – either help by having a fashion line to meet their needs, or helping them see there are different ways to look good.